More than a decade ago, I first wrote about how difficult it is for anyone who has not experienced withdrawal or post-acute withdrawal syndrome to actually believe a prescribed drug, taken as prescribed, could cause so much pain and devastation when coming off it. I referred to it as “the unbelievability factor.” Despite many ensuing years of awareness promotion, lobbying, new research, etc., by dedicated advocates, academics, and medics, the problem persists. This post recognises this and the repercussions you face daily.
I know it is not uncommon for you to encounter scepticism or disbelief from others, including friends, family, and even healthcare professionals. Some might dismiss your symptoms as imagined or exaggerations, adding an extra layer of difficulty to an already challenging journey. As someone supporting individuals and families affected by withdrawal and post-acute withdrawal syndrome for almost two decades, this is something I witness daily. If this happens to you, I want you to know that your experiences are valid, and you are not alone.
Withdrawal from benzodiazepines, z-drugs, and antidepressants is a complex process that can bring about a range of physical and psychological symptoms. These symptoms can be extremely debilitating, affecting your daily life and overall well-being. The effects of withdrawal and PAWS are real and significant.
It’s crucial to remember that the timing of your symptoms coinciding with the discontinuation of these medications is not a mere coincidence. Your body and mind are re-adapting to functioning without the drugs, and this adjustment period can be challenging. Your body will not stop healing until it has regained homeostatic equilibrium. So it is important to hold onto hope and recognize that healing is the outcome of this experience.
This withdrawal journey is not easy (understatement), and there may be times when you feel discouraged or overwhelmed. Encountering scepticism or judgment from others who don’t understand what you’re going through can make coping worse, and being medically gaslighted and stigmatized can cause additional problems. But I urge you to stay strong and resilient and don’t let anyone make you doubt what you already know to be true. It is not all in your head. As I write this, I find myself smiling as I recall a lovely lady, many years ago, telling me that when her doctor told her the symptoms were all in her head, she replied, “Yes doctor, where my GABA used to be.” Of course, she has since healed and although what she said isn’t scientifically accurate, it is still quite funny.
Today, and always, remember that your experiences are valid, and you deserve understanding and support. Surround yourself with compassionate individuals who believe you, or if they are doubtful, choose to still support you as you await your full healing. Seek out healthcare professionals who listen to your concerns and provide the support and guidance you need.
Above all, never give up hope. The road to recovery may be long and challenging, but with perseverance and determination, you will endure, overcome, and one day celebrate your recovery. Trust in your strength and resilience and know that easier times are ahead. You are capable of overcoming any challenges that come your way including this one. Keep holding on. If you fall, catch your breath, and always get back up. Then you keep going… and you never lose sight of the light at the end of the tunnel.
With much compassion,
